FDA approves treatment for rare disease, offering hope to Florence family

This week, the Food and Drug Administration approved the first-ever treatment for people living with an extremely rare ...
People

Toddler Diagnosed with Rare Disease at 2. After Years of Life-Changing Therapy, His Progress Could Be Stripped Away (Exclusive)

Now 4, Cade Jobsis has been receiving treatment that helps keep him strong. But with funding pulled, his parents don't know how much longer he'll get it Leah Serena Photography After going through the ...
AOL

Toddler Diagnosed with Rare Disease at 2. After Years of Life-Changing Therapy, His Progress Could Be Stripped Away (Exclusive)

After going through the unimaginable when their young son was diagnosed with a rare, neurodegenerative disease, Emma and Dylan Jobsis have found themselves once again fighting for their son. The ...