Rett syndrome is a rare neurodegenerative disorder that almost exclusively affects girls. It is typically diagnosed in babies ...

Neurogene Inc. (Nasdaq: NGNE), a clinical-stage company founded to bring life-changing genetic medicines to patients and families affected by rare neurological diseases, today announced that the first ...

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Paige Nues: We have never felt more optimistic than [at] any time in the Rett syndrome’s history in terms of diagnosis today. We have a good idea of what the natural history of Rett syndrome looks ...

Neurogene ( ($NGNE) ) just unveiled an update. On November 6, 2025, Neurogene Inc. announced the dosing of the first participant in the Embolden™ ...

An expert discusses the current treatment landscape of Rett syndrome including the goals of treatment and implications for utilization management strategies with the disease. David Lieberman, MD, PhD: ...

The SpartanNash YMCA of Greater Grand Rapids recently hosted an open-swim event as part of a newly-launched program called ...

Rett syndrome is one of the rare genetic disorders and almost exclusively affects girls. In Germany, an estimated 5,000 people are affected, with about 50 new cases each year. A disturbing sign: After ...

Richard Engel, chief foreign correspondent for NBC News, announced on Thursday that his six-year-old son Henry had passed away from a rare neurological disorder. “Our beloved son Henry passed away,” ...

Rett syndrome is a neurodevelopmental disorder that primarily affects girls, most of whom have mutations in the transcription regulatory gene MECP2. However, mutations in MECP2 also have been ...